Tag Archives: EDS

  1. Eye See… Everything

    Leave a comment

    July 24, 2016 by Darlene McC

    I posted earlier this week that I’ve been having some complications with Ehlers-Danlos Syndrome related symptoms.  That my ortho give …
    Continue reading

  2. Matters of my Heart

    1

    July 20, 2016 by Darlene McC

    There are a half dozen types of Ehlers-Danlos Syndrome; and while I’m unfortunate enough to have it, I don’t have one of …
    Continue reading

  3. NYU Medical Time

    Leave a comment

    July 11, 2016 by Darlene McC

    Yesterday was a volleyball adventure in Prospect Park Undefeated team; but a price to pay. Knee feels like someone is …
    Continue reading

  4. Wahls Protocol

    1

    July 7, 2016 by Darlene McC

    Almost 2 years ago I attended a lecture on a “revolutionary” approach to treating MS by Dr Terry Wahls, whom …
    Continue reading

  5. The (Fitness) Journey Never Ends – it just changes

    Leave a comment

    October 2, 2015 by Darlene McC

    I love my job. I love my team…. But 2 years of management has destroyed my body…2 years of devolving into who we think of as “our clients” (sedentary, bad diet, sore back, looooong stints at the computer, high stress) has taught me just as much as recovery from illness did. And the the old adage “you don’t use it you lose it” has been deeply driven home.

    Fitness isn’t a destination, just like life isn’t. It’s a process, and that’s what’s great about it. As our priorities shift and evolve, our bodies (and, in turn, minds) will as well. I’m at the crossroads where I’ve grown into my job enough that I can shift at least part of my priority back to myself and my wellness.

Instagram

So much of life is in how we transition. In if we allow ourselves a process, get stuck, or judge ourselves in moments of deep change. If we can find calm in our storms and not cling as things slip past us. - - - I've been home from Koh Phanang, Thailand for 4 days & mostly sleeping. This beautiful trip rocked me and my soul. I've come back with clarified questions and a fire inside, ready for the exciting changes to come. - - - Has something ignited your fire recently? What changes are on your horizon that you're hoping to rise to? Share in the comments. - - #throwbackthursday #tt #kohphagan #thailand #wanderlust #wanderwoman #sunset #beachvibes #beachlife #zenbeach #beautiful #meditation #selfgrowth #personaldevelopment #selfcare #growandchange
Travel is a huge challenge for #spoonies - for those with hEDS it's a shock to the nervous system and a real struggle. I'm only 1/3 of the way into my 40 hour haul from Thailand to New York and was already starting to feel the effects of the flight. Dizzy, nauseous, disoriented. What's a #zebra to do? . . . I applied all I've learned the last month with @luna_alignment_yoga of course! If my nervous system is the problem, what if I use movement to help? First I got a massage and took a shower, because that always helps. Then I combined @yogigypsynomad and my finals her use of #sunsalutation to stimulate the autonomic nervous system, and then I added some more forward folds and gentle twists to calm it back down. Finished up with 7 min of pranayama to balance the sympathetic and parasympathetic systems. . . The result? I'm hungry! When those with hEDS fly we experience gastroparesis - a stalled digestive system. Thats why the nausea. Being hungry means the practice worked! Any spoonies out there who want to know more DM me. . . What do you think @talswissa is that intelligent practice? Would Anu be proud? 😉 . . . #movementismymedicine #spoonievictory #spooniewarrior #myillnessdoesnotdefineme #yogaeverywhere #lunaalignmentyoga #alignmentyoga #alignmentfirst #trainsmarter #selfcare #selfcareisselflove #learningtolovemyself #hEDS #EhlersDanlos #EhlersDanlosSyndromes
Being the middle of 5 crazies. And I wouldn't have it any other way. . . #nationalsiblingday #wildchild #middlechild #threes #lifeinthrees #wanderlust #farfromhome #homesick
It's important to be a supportive friend - and when @alliolson23 and I find the rest of the @luna_alignment_yoga TTC crew on the beach the support was in full force! . . . This trip has taught me so much about myself. Things I was scared to try that I can now see I'm capable of, that I can learn to trust more deeply and open up, and apparently that I can FLY! . . . 10 more days in Koh Phanang and trying to live fully in them. . . #kohphagan #thailand #200yttc #200ytt #acroyoga #trysomethingnew #spoonievictory #spooniewarrior #spoonie #iamnotmyillness #eds #EhlersDanlosSyndromes #alignmentyoga #challengeyourself #strongissexy #strongwoman
It's a full moon tonight on Koh Phanang but the stars are out early. . 📸 @paulinedemuynck . #kohphagan #secretbeach #nude #selflove #takearisk #myillnessdoesnotdefineme #bigisbeautiful #thailand #fullmoon #bluemoon #srithanu #beachlife #beautiful #beachvibes #selfacceptance
I came to Thailand to shift my perspective - today we took that literally! My first full inversion! . . . Conventional medical "wisdom" will tell you I can't do this - that people with Ehlers Danlos Hypermobility Type aren't getting any better. The first two weeks of Alignment Yoga Teacher Training have focused on what I figured out to survive: with proper alignment and strength the body can stabilize. Strength is the name of my game! . . . No doubt there are some zebras and spoonies out there struggling. To you I say: it's been 11 years since my diagnosis and I've come lightyears since then. Dig deep. Keep learning. Never surrender (except in meditation). . . . And I still have 2 weeks more! 🙌 . . . #EhlersDanlosSyndromes #EhlersDanlos #hEDS #spoonievictory #spoonie #spooniewellness #yogi #inversion #headstand #yoga #200ytt #alignmentyoga #lunaalignmentyoga @luna_alignment_yoga #strong #strongwoman #kohphagan #selflove #selfcareisselflove #nevergiveup